Our private medical data is for sale to the highest bidder—whether or not you even know it was sold, let alone whether you gave permission.
Our most intimate medical secrets are the main product in a multi-billion-dollar business. Prescription records, surgical history, what diseases you test positive for—all of it lifted from your medical records without knowledge or consent and traded to data mining corporations like IBM and General Electric for huge profit.
Enriching private corporations with our private medical data is not what our health system is built for. It’s time Congress protected the patient-doctor privilege at all levels.
Tell Congress our private medical data is not for sale. Protect our privacy now!
This is obviously an unconscionable massive invasion of privacy, but it also poses risks to our immediate personal safety. While most of the info is stripped of identifying information, not all of it is—and researchers have already re-identified patients even from anonymized records. We don’t want to imagine what would happen if that fell the hands of a neighbor, an abusive ex or worse…
We’ve been fighting the mercenary bio-medical industry all over the globe for years. When an Australian biotech corp took a breast cancer survivor to court to patent a gene, over 150,000 of us stood up for her and won. When Pharma Bro Martin Shkreli jacked up a vital drug by 5,500%, nearly 300,000 of us fought back. And when the British health care service tried to sell its citizens’ health data for profit too, over 200,000 British SumOfUs members did their best to stop it.
We’ve got to wake Congress up and let it know our bodies are not for profit.
Demand that Congress protect Americans’ privacy and stop allowing Big Data free access to our health histories!